Well hello lovelies it’s been a while tonight I’m just gonna share with you my experience so far of a new treatment I am undertaking tomorrow and the reaction it has had from friends and family.
As some of you guys will know I have rheumatoid arthritis and it’s a bitch of a condition to have (urg I hate the word condition) for the last 3 plus weeks it has taken hold of my body and well and truly kicked my ass I think I have felt the worse I have felt so far both in body and spirit. I have also had to make a pretty big and scary decision as to how my RA is going to be treated and have to come to the decision that mabthera or rituximab is my best option after alot of researching and talking things through with family, friends and colleagues as this treatment means me having to have time off work.
Now a Lil info about this treatment I will be admitted to a haematology ward tomorrow and given 3 infusions (drips) one being a steriod, one an antihistamine and then the actual treatment mabthera in total it should take around 6-8 hours, this drugs primary use in a larger dose than I am having is for the treatment of some cancers I will be having 2 of these treatments first one tomorrow then the next in 2 weeks. It is designed to bond with my blood and prevent the bad cells from attacking my body so in essence stopping the arthritis in its tracks. Now with the drug comes all sorts of weird and down right scary side affects none of which I feel like telling you right now but I will go into details of them at a later date but right now I’m pretty scared in all honesty as this is a relatively new treatment here in the UK and I’m not 100% sure what tomorrow holds for me as yet. But I guess what I really wanted to say in this post is thankyou, thankyou to everyone who took the time over the last few nightmare weeks to see if I’m ok and help me get my head round this new treatment option. The support and help I have had from friends, family and Co workers is overwhelming I am so lucky that I am surrounded by amazing, kind and loving individuals that have been willing to take time out of there days to talk to me, help me and reassure me. And hopefully tomorrow is gonna be the start of a new dare I say pain free chapter of my life so with a touch of trepidation and lots of laughs tomorrow I will have my first course of treatment.
If there is anyone reading this that is having the same treatment let me give you one piece of advise. Do your research and talk to loved ones, friends and even Co workers about how you are feeling! I fully freaked out about this. And if it wasn’t for the patients of the amazing people I have managed to surround myself with I don’t know if I would of got to this point.
I will keep all you guys posted on how it goes over the next few weeks
Take care of each other and don’t be dicks 😉 xxx